Sarah's story with alpha-mannosidosis
Listen to learn more about Sarah’s journey from diagnosis to living with alpha-mannosidosis. Chiesi Global Rare Diseases is dedicated to helping individuals and their caregivers share their stories about living with rare and ultra-rare diseases.
Join the alpha-mannosidosis community
Chiesi Global Rare Diseases is dedicated to helping individuals and their caregivers living with alpha-mannosidosis.
Additionally, there are a number of patient organizations and support groups. Patient organizations can provide support and insights from others who have been through similar diagnoses.
International Society for Mannosidosis and Related Diseases
A community for those with glycoprotein storage disorders, including alpha-mannosidosis.