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Sarah's story with alpha-mannosidosis

Listen to learn more about Sarah’s journey from diagnosis to living with alpha-mannosidosis. Chiesi Global Rare Diseases is dedicated to helping individuals and their caregivers share their stories about living with rare and ultra-rare diseases.


Join the alpha-mannosidosis community

Chiesi Global Rare Diseases is dedicated to helping individuals and their caregivers living with alpha-mannosidosis.

Additionally, there are a number of patient organizations and support groups. Patient organizations can provide support and insights from others who have been through similar diagnoses.

International Society for Mannosidosis and Related Diseases
A community for those with glycoprotein storage disorders, including alpha-mannosidosis.

Click here to learn more

Click here to download a guide for parents and caregivers.